Looking for a Kidney

Posted on February 15, 2017

We had our first meeting with the Tampa General Transplant Department today. It was, very informative. We had a class, met with our transplant coordinator, social worker and financial coordinator. Lots of questions asked and answered. They know pretty much everything about Barry, except for his kindergarten teacher’s name.

Everything went well today. So far, there doesn’t seem to be anything that will hinder Barry getting a transplant. He just has a lot more testing to go through. We will get a call in about a week to schedule our next round of meetings. That will be meeting the doctors and getting a list of all the testing Barry will have to complete.


We also learned more about the Living Donor process. Long story short, it would be ideal for Barry to have a living donor. Things would move a lot quicker and his chances are higher with one. IF you would like to be evaluated to see if you’re a match for Barry, you can call 813-844-5669 or log onto www.tgh.org/LivingDonorForm and fill out the form. All of this is completely confidential and we would be forever grateful.

Financially, our insurance will cover the bills for this. Evaluation takes about 3-5 days and the hospital stay after surgery is about 2-3 days. Just something to think about. *

Cheers to 2017

Posted on January 1, 2017

2016 was quite the year for us. We had good times, mediocre times, happy times and terrifying times.

We had a few major events happen this past year – we bought a house! Yep, we became homeowners the day after my 35th birthday and we spent the better part of the summer working on it. The only major thing we have left to do is putting a floor into what is now B’s medical supply closet, aka my former/eventual craft/guest room.

This year we also found out about B’s kidney function, or lack thereof. Since October, we’ve been playing catch up. But things are really starting to look up. B’s on dialysis and we are starting the process for transplant evaluation.

Did I mention we are also back in the immigration line?

All in all, we had times and we just went with it. It’s what we do.

Here’s to 2017 and all of the times we will have!

Delivery!

Posted on December 17, 2016

It’s official, our house is now like a lil health care clinic. Yesteryear we got the delivery of everything we’ll need for dialysis for the next month (or two).

It look like it will be even longer before we get the guest bedroom up and running. That room is now our supply room!

PD Training – round 1

Posted on December 15, 2016

This week we’ve been training how to do the dialysis manually and we’ve passed! B will start doing it at home starting tonight.

Next week, we will start the training on the machine. In the mean time, our house is starting to look like a hospital room. We’ve got an IV pole, gause, tape, masks, and tomorrow we get a shipment of more medical supplies!

All in all, it’s going quite well. It’s just going to take some time for us to get used to our new normal.