Rough Night

Posted on November 22, 2016

So last night…

It was rough to say the least. Most of you are aware now that B is back in the hospital and not for the surgical procedure that was planned for today.

I brought him to the ER last night because he just wasn’t “right” when I got home from work.

It turns out his potassium levels “were not compatible with life.” He actually coded/went into cardiac arrest. CPR and a few shocks later he was back.

He’s been admitted to ICU and underwent emergency dialysis last night.

Today he’s much better. He’s awake and joking. Physical therapy had him up and Walking the halls.

His big thing right now is bragging about how he died first and that it was a good sleep. Go figure!

He’s just going to be chilling for the rest of today and possibly do another round of hemodialysis tomorrow. It’ll depend on his labs. We are also still going to see about getting the catheter for the peritoneal dialysis. But in the meantime he will be doing hemo.

Surgical Consult

Posted on November 16, 2016

In order to do the peritoneal dialysis, B has to have some hardware installed. We had that surgical consult yesterday.

It is an outpatient procedure and it’s scheduled for Tuesday November 22nd.

It will take a few weeks to heal. During that time, we will get schooled on the ins and outs of how to do the dialysis.

All in all, short, sweet and to the point.

Posted on November 9, 2016

I originally set up this site to track and share our immigration process. That kind of fell to the wayside. However, with B’s illness and lots of people to update – I’m bringing it back. Also we’ll be going through another round of immigration at the end of November, so two birds, one … site. *

Six Percent

Posted on November 9, 2016

We had another doctor’s appointment today. Turns out B’s kidneys are declining faster than we expected. He went from 10% at the beginning of October to 6% today. Because of this, dialysis is neigh.

After looking at the pros and cons of they types of dialysis, B decided on peritoneal dialysis. It’s one that he’ll do nightly. We’ll have a machine set up and it’ll work while he sleeps. While it will be a daily thing, it’ll be the one that least impacts his life, mainly meaning that he can continue to work.

He has a surgical consultation on Monday to get the process started. First he’ll need to get a catheter in is stomach. He’ll wait 2 weeks to heal before the dialysis will start. During this time, we will be taught all the ins and outs of the what, when, where, and hows of the machine he will have and the process.

All in all, we are looking at him starting at the end of November, beginning of December.

Once we get him up and going on this, we will start tackling getting him referred over to the transplant team and getting him listed. It’s just one thing at a time. *

Pneumonia, High Blood Pressure, Renal Failure

Posted on October 9, 2016

On October 3rd, B went to the walk in clinic for a cough. He was referred to the ER because of extremely high blood pressure. We then found out he had pneumonia.

They ran test after test to try to find the cause of his abnormally high blood pressure. With those tests, we found out the shocking fact that he’s in Stage 5 Renal Failure.

What?

Yeah, that was our reaction too. Turns out that his kidneys have been hoarding an antibody for quite a long time. And by long, I mean roughly 15 years. Turns out that even if he had known about it, there’s nothing that could have been done to reverse it. It’s kind of that blessing in disguise – he didn’t know, so it didn’t impact/consume his daily life.

B was in the hospital for 5 days, 3 in ICU because of the blood pressure. We’ve got that under control and are now focused on what to do about his kidneys. Our main issue is knowledge. Because we didn’t know he was sick, he doesn’t have the history of blood tests showing his rate of decline. So we are in a wait and see situation. Right now his kidney function is at about 10%. Dialysis will be in his near future and we are contemplating the different types. Transplant will also be on the table, but first things first, we have to see how just how fast he’s declining. *