Posts tagged “kidneys

Looking for a Kidney

Posted on February 15, 2017

We had our first meeting with the Tampa General Transplant Department today. It was, very informative. We had a class, met with our transplant coordinator, social worker and financial coordinator. Lots of questions asked and answered. They know pretty much everything about Barry, except for his kindergarten teacher’s name. Everything went well today. So far, there doesn’t seem to be anything that will hinder Barry getting a transplant. He just has a lot more testing to go through. We will get a call in about a week to schedule our next round of meetings. That will be meeting the doctors and getting a list of all the testing Barry will have to complete. We also learned more about the Living Donor process. Long story…

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Cheers to 2017

Posted on January 1, 2017

2016 was quite the year for us. We had good times, mediocre times, happy times and terrifying times. We had a few major events happen this past year – we bought a house! Yep, we became homeowners the day after my 35th birthday and we spent the better part of the summer working on it. The only major thing we have left to do is putting a floor into what is now B’s medical supply closet, aka my former/eventual craft/guest room. This year we also found out about B’s kidney function, or lack thereof. Since October, we’ve been playing catch up. But things are really starting to look up. B’s on dialysis and we are starting the process for transplant evaluation. Did I mention…

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PD Training – round 1

Posted on December 15, 2016

This week we’ve been training how to do the dialysis manually and we’ve passed! B will start doing it at home starting tonight. Next week, we will start the training on the machine. In the mean time, our house is starting to look like a hospital room. We’ve got an IV pole, gause, tape, masks, and tomorrow we get a shipment of more medical supplies! All in all, it’s going quite well. It’s just going to take some time for us to get used to our new normal.

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Rough Night

Posted on November 22, 2016

So last night… It was rough to say the least. Most of you are aware now that B is back in the hospital and not for the surgical procedure that was planned for today. I brought him to the ER last night because he just wasn’t “right” when I got home from work. It turns out his potassium levels “were not compatible with life.” He actually coded/went into cardiac arrest. CPR and a few shocks later he was back. He’s been admitted to ICU and underwent emergency dialysis last night. Today he’s much better. He’s awake and joking. Physical therapy had him up and Walking the halls. His big thing right now is bragging about how he died first and that it was a…

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Six Percent

Posted on November 9, 2016

We had another doctor’s appointment today. Turns out B’s kidneys are declining faster than we expected. He went from 10% at the beginning of October to 6% today. Because of this, dialysis is neigh. After looking at the pros and cons of they types of dialysis, B decided on peritoneal dialysis. It’s one that he’ll do nightly. We’ll have a machine set up and it’ll work while he sleeps. While it will be a daily thing, it’ll be the one that least impacts his life, mainly meaning that he can continue to work. He has a surgical consultation on Monday to get the process started. First he’ll need to get a catheter in is stomach. He’ll wait 2 weeks to heal before the dialysis…

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